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MOVING OUT

Young adulthood brings big transitions - finishing school, becoming a legal adult, and potentially moving out of the family home. In the disability sector, these transitions are more complex. Some family carers choose to keep their young adult at home for as long as possible; others begin to explore alternative living options when their child is in their 20s. There’s no one right path - just the one that fits your family best.

 

Moving out of the family home is a significant milestone for both the disabled person and their parents/whanau/guardians, requiring careful planning, support, and a willingness to embrace new possibilities. By focusing on the young adult's needs and preferences, ensuring access to necessary support services, and providing a supportive environment, this transition can be a positive and enriching experience for everyone involved. 

Moving out of the Family Home

Key considerations

For the disabled young adult:

  • Independence and Self-Determination: 'Moving out' is a natural stage of adult life and can be a crucial step toward greater independence and self-determination.

  • Personal Preferences: It's important to involve the disabled adult in the decision-making process, respecting their preferences. Ensure that AAC is used and incorporated into all the planning stages and included in the final care plans.  

  • Support Services: It's essential to ensure access to appropriate support services, whether it's supported independent living, shared housing, or in-home support, to meet the individual's needs. 

  • Financial Considerations: Moving out may require financial assistance, such as government programs or support from organizations that help with housing and living expenses. 

  • Transition Planning: A well-planned transition, starting early with discussions and preparation, can help ensure a smoother and more successful move. 

For parents:

  • Emotions and Adjustment: Parents may experience a range of emotions, from pride and excitement to extreme anxiety, sadness and guilt. It's important to acknowledge these feelings and allow oneself time to adjust. 

  • Support and Resources: Parents can seek support from other parents of disabled children, support groups, or professionals who can offer guidance and resources. 

  • Maintaining Relationships: Though the child is moving out, it's important to maintain a strong relationship with them, whether through regular visits, phone calls, or other forms of communication. (The Welfare Guardian will remain directly involved with the provider and the house staff.)

  • Self-Care: Parents need to prioritize their own well-being and engage in self-care activities to help them cope with the anxiety that comes with such a major change. 

Using the EGL approach, families/whanau and Circles of Support groups can help their adult child establish an independent living arrangement within their own community, and with friends they know from their school. Interested families are encouraged to meet regularly to build relationships and develop a shared vision. This is a process that takes time and should not be rushed. Once the vision is clear, the group of families can approach the NASC to find a provider who aligns with their goals. Securing the right home and caregivers is also a key part of this journey that may require more creative thinking and problem-solving skills.  

Residential Providers & other Living Options ​

Providers managing residential homes:

Independent supported living options:

STAY IN TOUCH ON SOCIAL MEDIA

Social media platforms are used to:

  • Connect families around the world

  • Raise global awareness for Angelman syndrome/all rare conditions

  • Share new research information

  • Encourage open discussion forums for new therapeutics

  • Gather general & specific data and information

  • Advocate for treatments

  • Fundraise effectively

  • Help find participants for trials

          and much more….

See Social Media

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Always contact your own medical practitioner for any medical advice.

Information about Angelman syndrome and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

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