MOVING OUT

Key considerations

For the young adult with AS:

• Independence & Personal Preferences: 'Moving out' is a natural stage of adult life and can be a crucial step toward greater independence. It's important to involve the disabled adult in the decision-making process, respecting their preferences. Ensure that AAC is used and incorporated into all the planning stages and included as an essential resource, in the final care plans.  

• Support Services: It's essential to ensure access to appropriate support services, whether it's supported living, shared housing, or in-home support, to meet the individual's needs. Access to a suitable day programme, community activities, and transportation, also needs to be considered. 

• Financial Considerations: Moving out may require financial assistance, such as government programs, support from organizations that help with housing and living expenses, and at times, personal contributions. 

• Transition Planning: A well-planned transition, starting early with discussions and preparation, can help ensure a smoother and more successful move. 

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For parents/guardians/whanau:

• Emotions and Support: Parents/guardians may experience a range of emotions, from pride and excitement to extreme anxiety, sadness and guilt. It is important to acknowledge these feelings and allow oneself time to adjust. Parents/guardians can seek support from other parents of disabled children, support groups, or professionals who can offer guidance, counselling and resources. 

• Maintaining Relationships: Though the child is moving out, it is important to maintain a strong relationship with them, whether through regular visits, phone/video calls, or other forms of communication. The Welfare Guardian will remain directly involved with the provider and house staff. 

• Self-Care: Parents/guardians need to prioritize their own well-being and engage in self-care activities to help them cope with the anxiety that comes with such a major change. ​

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Using the EGL approach, families/whanau and Circles of Support can help their adult child establish an independent living arrangement within their own community, with compatible friends from their school or local community. During the later school years, interested families can meet up regularly to build relationships and develop a shared vision. Once the vision is clear, the family group can approach the NASC together, to find a provider who aligns with their goals. Securing the right house and best staff, is a key part of this journey that may require more creative thinking and problem-solving skills. This process can take time and should not be rushed.