RESOURCES
Sign up for our TAN newsletters to stay in touch with all the latest news and events. Here are some recent newsletters:
LINKS TO PUBLICATIONS
& RESOURCES
Education
Learning better together. Working towards inclusive education in New Zealand schools
by Dr Jude MacArthur
DOWNLOAD
Person-centred Planning for Transition doc - by RICI. Print out and fill in by the child's whanau and Circles of Support team
Communication
by Dr. Calculator, Published April 3, 2018
'His philosophy is built upon presuming confidence...'
PURCHASE ONLINE
'I have something to say' by Tracey Campbell, on behalf of ASSERT
DOWNLOAD
Inclusion
Ministry of Health WEBSITE
Your Guide to Individualised Funding
Ministry of Health
What is Person-Centered Planning?
PDF RESOURCE
General AS Information
Angelman Syndrome (Clinics in Developmental Medicine) Paperback - on Amazon 2008, by Bernard Dan
DOWNLOAD: This booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand
Health
Management of Angelman Syndrome A Clinical Guideline
Angelman Syndrome Guideline Development Group
‘Living well’? Children with disability need far greater income support in Aotearoa
Poverty Action Group
DOWNLOAD
NZ General Resources
YouTube
View The Angelman Network channel here.
You can search 'Angelman Syndrome' on Youtube to find many informative videos made by AS organisations as well as families around the world. These videos cover many topics and relate to different aspects of the condition. Here are some great links:
Video Training Series and Presentations on Communication and Education
Angelman Academy -
Presuming Potential
Printable PDF Docs
-
Education Supports for Angelman Syndrome (GEMSS) Genetics Education Materials for School Success provides an excellent resource page with info for teachers/aides working with students who have AS
-
Angelman Syndrome At a Glance (GEMSS)
-
Your Guide to Understanding Genetic Conditions - Angelman Syndrome - Genetics Home Reference Reference)
Behaviours and AS
-
Behaviours that Challenge in Angelman Syndrome - Website developed by Cerebra Centre for Neurodevelopmental Disorders in partnership with Cerebra, Economic and Social Research Council and syndrome support groups to reduce the amount of time it takes research findings to reach parents, carers and professionals – the people who need the information the most.
-
Behaviour Modules