top of page
Memorial Candle

In Memorium

Due to complications that can be presented by Angelman Syndrome, there are families in Aotearoa NZ who have faced the tragedy of losing a loved one.

These family members are never forgotten; we celebrate their lives and remember them in this gallery. We also honour them each year on Feb 15th, as we observe
International Angelman Day.

We Remember them

“What we have enjoyed we can never lose. All that we love deeply 

becomes a part of us.” – Helen Keller

Suzanne Austin (1980-2002)

Elijah Humphries (2003-2007)

Oliver Lowry McWilliams (1966-2012)

Felicia Porter (1994 - 2017)

Kirsteen (1998 - 2023)

Charlotte Story (2004 - 2023)

Hugo Johnston (2021 - 2025)

angelas pic_edited.jpg

In loving memory of Hugo 

Four years ago, Hugo arrived in the world and filled the lives of his family, friends, and everyone who had the privilege of knowing him with so much joy.

 

His laughter, warmth, and spark touched countless hearts in his short but precious time with us.

Dunedin: 2021 - 2025

Kirsteen.jpg

In loving memory of Kirsteen

Kirsteen brought so much love and joy into everyone she met. She was the light that made the world feel brighter, colours seemed to shine so much more. Her smile and laugh were always able to make hard days seem so much better. Kirstee, we miss you every day, but there is a sense of peace knowing you fly with the angels.

We love you always and forever.

Christchurch: 1998 -2023

Charlotte Story.jpg

In loving memory of Charlotte 

Always such a joy to be around, Charlotte would light up the room when ever she came in.

 

We dearly miss her so much; her beautiful smile and giggles.

 

Fly high our darling Angel. 

Christchurch: 2004 - 2023

felicia-january-2017_1527678620093.jpeg

In loving memory of Felicia 

Felicia's life was cut short by cancer. She lived her life to the fullest, supported by a loving extended family and community of carers.

Felicia and her family were avid supporters of The Angelman Network and regular participants at our fundraiser events and family gatherings around the Auckland region. Her bright smile and sociable personality will be greatly missed. 

Pukekohe: 1994 - 2017

lm1_1497758724696_edited.jpg

In loving memory of Oliver 

 “To everything there is a season, and a time to every purpose under the heavens: A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted; A time to kill, and a time to heal; a time to break down, and a time to build up; A time to weep, and a time to laugh; a time to mourn, and a time to dance….” Ecclesiastes Ch3 

Orewa: (46yrs) 1966 - 2012

lm2_1497759240333.png

In loving memory of Elijah 

Fly, fly little wing
Fly where only angels sing
Fly away, the time is right
Go now, find the light

Read more about Elijah’s Story here

Christchurch: 2003-2007

STAY IN TOUCH ON SOCIAL MEDIA

Social media platforms are used to:

  • Connect families around the world

  • Raise global awareness for Angelman syndrome/all rare conditions

  • Share new research information

  • Encourage open discussion forums for new therapeutics

  • Gather general & specific data and information

  • Advocate for treatments

  • Fundraise effectively

  • Help find participants for trials

          and much more….

See Social Media

global networking.jpg
aotearoa New Zealand.jpg

The Angelman Network is a

Registered Charitable Trust based in New Zealand

CC46746.

angelmannetwork@gmail.com

Disclaimer: Links to other Internet sites are for the convenience of all web-users. The Angelman Network is not responsible for the availability or content of these external sites and we do not endorse, warrant or guarantee any products, services or information that may be offered at these sites.

Always contact your own medical practitioner for any medical advice.

Information about Angelman syndrome and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

©2026 The Angelman Network

bottom of page