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In Memorium

Due to complications that can be presented by Angelman Syndrome, there are families in NZ who have faced the tragedy of losing a loved one. These family members are never forgotten; we celebrate their lives and remember them in this gallery. We also honour them each year on Feb 15th, as we observe International Angelman Day.

“What we have enjoyed we can never lose. All that we love deeply

becomes a part of us.” – Helen Keller

 

Suzanne Austin (1980-2002)

Elijah Humphries (2003-2007)

Oliver Lowry McWilliams (1966-2012)

Felicia Porter (1994 - 2017)

Kirsteen (1998 - 2023)

Charlotte Story (2004 - 2023)

In loving memory of Kirsteen

1998 -2023

Kirsteen brought so much love and joy into everyone she met. She was the light that made the world feel brighter, colours seemed to shine so much more. Her smile and laugh were  always able to make hard days seem so much better. Kirstee, we miss you every day, but there is a sense of peace knowing you fly with the angles. We love you always and forever.

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In loving memory of Charlotte Story

 

Christchurch: 2004 - 2023

Always such a joy to be around, Charlotte would light up the room when ever she came in. We dearly miss her so much; her beautiful smile and giggles.

 

Fly high our darling Angel. 

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In loving memory of Felicia Porter

 

Pukekohe: 1994 - 2017

Felicia's life was cut short by cancer. She lived her life to the fullest, supported by a loving extended family and community of carers. Felicia and her family were avid supporters of The Angelman Network and regular participants at all our fundraiser events and family gatherings around the Auckland region. 

 

Her bright smile and sociable personality will be greatly missed. 

In loving memory of Oliver Lowry McWilliams

Orewa, Auckland: (46 years old) 1966 - 2012

 “To everything there is a season, and a time to every purpose under the heavens: A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted; A time to kill, and a time to heal; a time to break down, and a time to build up; A time to weep, and a time to laugh; a time to mourn, and a time to dance….” Ecclesiastes Ch3 

In loving memory of Elijah Humphries

 

Christchurch: 2003-2007

Fly, fly little wing
Fly where only angels sing
Fly away, the time is right
Go now, find the light

Read more about Elijah’s Story here: – https://elijahangel.wordpress.com/

STAY IN TOUCH ON SOCIAL MEDIA

Social media platforms are used to:

  • Connect families around the world

  • Raise global awareness for Angelman syndrome/all rare conditions

  • Share new research information

  • Encourage open discussion forums for new therapeutics

  • Gather general & specific data and information

  • Advocate for treatments

  • Fundraise effectively

  • Help find participants for trials

          and much more….

See Social Media

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The Angelman Network is a

Registered Charitable Trust based in New Zealand

CC46746.

angelmannetwork@gmail.com

Disclaimer: Links to other Internet sites are for the convenience of all web-users. The Angelman Network is not responsible for the availability or content of these external sites and we do not endorse, warrant or guarantee any products, services or information that may be offered at these sites. Always contact your own medical practitioner for any medical advice.

©2025 The Angelman Network

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