Angelman Organisations and Support Groups around the World

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International Angelman Day brings together AS organisations from around the world. Organisations vary in their objectives and formal structure. Some are formal registered charities, others are informal parent support groups.

Organisations and groups are listed here in alphabetical order:

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Argentina

• Angelman Argentina Asociación Civil - National Association website

• Angelman Argentina Asociación Civil - National Association Facebook Page

• Desafio Todos Podemos Comunicarnos Angelman Argentina - Facebook group for families in Argentina

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Australia

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• Angelman Syndrome Association of Australia

• Foundation for Angelman Syndrome Therapeutics (FAST) Australia

• Queensland Angelman Association

• Angelman Association of Western Australia

 

Austria

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• Angelman Verein Österreich - National Association Website

• Angelman Verein Österreich - National Association Facebook page

 

Belgium

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• Angelman Syndroom België - National Association Website

• Angelman Syndroom België - National Association Facebook page

 

Brazil

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• Associação Comunidade Sindrome de Angelman - National Association website

• Associação Comunidade Sindrome de Angelman - National Association Facebook page

 

Canada

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• Angelman Syndrome Families - BC - Facebook page for families in British Columbia, Canada

• Angelman Syndrome Families - CANADA - Facebook group for families in Canada

• Canadian Angelman Syndrome Society (CASS)- National Association website

• Canadian Angelman Syndrome Society (CASS) - National Association Facebook page

 

Canada - Regional & Provincial Organisations

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• Angelman Syndrome Alberta-Saskatchewan Families - facebook group for families in Alberta & Saskatchewan

• La Fondation Syndrome d'Angelman du Quebec - Quebec Region website in French and English

• Centre de répit Angelman respite center - Société du syndrome d'Angelman Facebook page for French speaking Canadians

• The Angelman Syndrome Respite Centre (Le répit au centre Angelman) - Website of respite centre in Quebec (centre de rèpit au Québec pour les personnes atteintes du syndrome d'Angelman être soutenus pendant que leurs parents / membres de la famille ont une pause)

 

Chile

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• ANGELMAN CHILE - facebook group for families in Chile

• Familias Angelman Chile - National website for families in Chile (Sitio web nacional para las familias en Chile)

• Familias Angelman Chile - National Facebook page for families in Chile (La página de Facebook Nacional para las familias en Chile)

 

Colombia

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• SINDROME ANGELMAN COLOMBIA - facebook group for families & professionals in Colombia (Grupo de Facebook para las familias y los profesionales en Colombia 

 

Czech Republic

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• Angelman CZ - National Association website

• Angelman CZ - National Association Facebook page

 

Denmark

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• Angelmanforeningen i Danmark - National Association website

• Angelmanforeningen i Danmark - National Association Facebook page

 

Eastern European countries

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• Angelman Syndrome Eastern Europe - Facebook group for families in Eastern Europe including countries that have a National Association

 

Ecuador

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• Síndrome de ANGELMAN - ECUADOR - facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

 

Europe

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• European Angelmums (and dads) for a cure - A facebook group for Europe-based parents of children with Angelman Syndrome

 

Finland

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• Suomen Angelman-yhdistys ry - National Association perheille ja ammattilaista Suomessa verkkosivuilla

• Angelman perheet - facebook group for families in Finland (Facebook-ryhmä perheille Suomessa)

 

France

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• Association Française du Syndrome d'Angelman (AFSA) - National Association Website

• Association Française du Syndrome d'Angelman (AFSA) - National Association Facebook page

• Association Killian - Website to raise awarenes of Angelman Syndrome & bring families together in France (Site de sensibilisation du syndrome d'Angelman et de réunir les familles en France)

• Association Killian (Syndrome d’Angelman ) - Facebook group to raise awarenes of Angelman Syndrome & bring families together in France (groupe Facebook pour sensibiliser le syndrome d'Angelman et de réunir les familles en France)

• Syndrome Angelman France - National Association website

• Syndrome Angelman France - National Association Facebook page

• Syndrome Angelman France - Youtube videos in French language

 

Germany

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• Angelman e.V. - National Association website

• Angelman e.V. - National Association Facebook page

• Angelman-Eltern-Gruppe - facebook group for parents & families in Germany

• Jouline's kleine Welt - (Jouline 's small world) facebook group for families in Germany

 

Greece & Cyprus

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• National Association Angelman Syndrome Greece & Cyprus – www.angelman-syndrome.gr

• Facebook group: Angelman Syndrome Greece & Cyprus/Σύνδρομο Άγγελμαν Ελλάδα & Κύπρος –  Angelman Greece

 

Guatamala

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• Angelman Guatemala - National Association website

• Angelman Guatemala - National Association Facebook page

 

Hong Kong

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• Hong Kong Angelman Syndrome Foundation - National Association website in English, Traditional Chinese and Simplified Chinese versions

• Hong Kong Angelman Syndrome Foundation - National Association Facebook page

 

Hungary

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• Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association website

• Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association Facebook page

 

India

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• Angelman Syndrome India - Family Facebook page

• Angelman Society Guwahati India - facebook group for families in India

 

Ireland

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• Angelman Syndrome Ireland - National Association website

• Angelman Syndrome Ireland - National Association Facebook Page

 

Israel

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• Israeli Foundation for Angelman Syndrome - National Association website in Hebrew and English versions

 

Italy

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• O.R.S.A. - Organizzazione Sindrome di Angelman - National Association website

• Sindrome di Angelman - Italia - Facebook page (Italy)

• Associazione Angelman - National Association website

• Associazione Angelman - National association facebook page

• SINDROME DI ANGELMAN gruppo specifico per i familiari - Facebook group for families in Italy

• Il SorrisoAngelman: www.sindromeangelman.org

 

Japan

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• ~ Angel-no-kai - National association website

 

Malaysia

 

• Angelman Syndrome Malaysia - facebook group for families in Malaysia (kumpulan facebook untuk keluarga di Malaysia)

 

Mexico

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• Síndrome de Angelman México - National group facebook page for families in Mexico

• Angelman Syndrome - Mexico - family website to bring other families together in Mexico

 

Morocco

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• Syndrome Angelman Morocco - National group facebook page

 

Netherlands

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• Association Angelman Syndrome Netherlands - National Association website

• Angelman Syndroom NL - National Association Facebook page

• Nina Foundation - aims to stimulate Scientific Research into the cause and treatment of the Angelman Syndrome.(Nina Foundation website van naastenliefde voor onderzoek naar de oorzaken en behandeling van Angelman Syndroom)

• Nina Foundation - Nina Foundation Facebook-pagina(

 

New Zealand

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• The Angelman Network - National association website

• The Angelman Network - National Association Facebook Page.

• Angelman Syndrome NZ - Facebook group for families in New Zealand affected by Angelman syndrome.

 

Norway

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• Norsk Forening for Angelman Syndrom - National association website (National Association nettsted for familier og fagfolk i Norge)

• Norsk Forening for Angelman Syndrom - National Association Facebook Page (National Angelmans syndrom Association Facebook Page for familier i Norge)

• Angelmans syndrom (Norsk forening for Angelmans syndrom) - facebook group for families in Norway

 

Philippines

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• Angelman Syndrome Philippines - National association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

 

Poland

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• FAST Poland

• Fundacja Angelmana – National Association website​

• Zespołowi Angelmana Polska - Facebook page for families of individuals with Angelman Syndrome and professionals (Facebook Strona dla rodzin osób z zespołem Angelmana i specjalistów w Polsce)

 

Portugal

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• Síndrome de Angelman - Portugal - National Association Facebook page (Página Associação Nacional Facebook para famílias em Portugal)

• Angel - Associação Síndrome de Angelman Portugal - National Facebook group page(A página National grupo no Facebook)

 

Puerto Rico

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• "SINDROME ANGELMAN" UN ANGEL EN PUERTO RICO - facebook group for families in Puerto Rico (Grupo de Facebook para familias en Puerto Rico)

 

Russia

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• синдром ангельмана - Forum for Angelman Syndrome families in Russia (Форум Angelman Синдрома семей в России)

 

Slovakia

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• Angelman CZ (Slovensku) - auspicing Association website (Webové stránky auspicing Association)

 

South Africa

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• Angelman Syndrome in South Africa - Facebook group for parents, family members, friends, therapists and educators of children with Angelman Syndrome in South Africa

• South African Angelman Syndrome Group - Facebook page for families in South Africa (Suid-Afrikaanse Angelman sindroom Groep)

 

South Korea

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• 엔젤 만 증후군 - website/bulletin board of one family's story in South Korea

 

Spain

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• ASA - Asociación síndrome de Angelman - Asociacion Nacional Website

• ASA - Asociación síndrome de Angelman-ESPAÑA - Facebook la página de la Asociación Nacional

• Fundación Casa Angelman - Website (web de la Fundación)

• Casa Angelman - pagina de Facebook

 

Sweden

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• Angelman Syndrome - Sverige - National Association Facebook page (Riksförbundet sida för familjer i Sverige)

 

Switzerland

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• Angelman Verein Schweiz - National Association - German language

• Angelman Verein Schweiz - Facebook page German language

• AngelmanSuisse - National Association French language website

• AngelmanSuisse - Facebook Frenchs language

 

Turkey

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• ANGELMAN SENDROMU TÜRKİYE & ANGELMAN SYNDROME TURKEY - Facebook page (Türkiye'de aileler için Facebook sayfası)

United Kingdom

• ASSERT - Angelman Syndrome Support Education Research Trust - National Association website

• Angelman Syndrome Support, Education & Research Trust (ASSERT) - National Association Facebook page

• ASSERT Angelman Syndrome SCOTLAND - Facebook group for families in Scotland

 

Uruguay

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• SINDROME DE ANGELMAN EN URUGUAY - Facebook la página de la Asociación Nacional

 

USA

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• Angelman Syndrome Foundation (ASF) - National Association website for families and professionals

• Angelman Syndrome Foundation (ASF) - National Association facebook page for families & professionals

• Angelman Syndrome Foundation - Twitter page @angelman

• Foundation for Angelman Syndrome Therapeutics (FAST)- National Association website for families and professionals

• Foundation for Angelman Syndrome Therapeutics- National Association facebook page for families & professionals

 

USA - Regional Organisations

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• Angelman Syndrome Foundation Upper Northeast Region - Website of North East Region ASF for families in New England region of USA

• Angelman Syndrome Foundation Upper Northeast Region - Facebook page of North East Region ASF for families in New England region of USA

• Angel Voices - Facebook group that is meant to support caregivers in the New England region and provide a collaborative forum to share information.

• The Magnolias - Regional Angelman Syndrome Connections - Facebook group that consists of Angelman Syndrome families in the deep south. Louisiana, Mississippi, Alabama and North West Florida

• MECA - Mid East Coast Angels (Angelman Syndrome) - facebook group for families in Pennsylvania, New Jersey, Delaware, New York

• MidWest Angelman Families - Facebook group for families in Iowa, Nebraska, Missouri, and Kansas

• Pacific North West Angelman Syndrome Foundation - facebook page that covers the states of Washington, Oregon and Alaska

• Southern PA/MD/ WV/ Northern VA/ D.C. Angelman Familes - facebook group for families in Pennsylvania, Maryland, West Viriginia, Virginaia and Washington DC.

 

USA - State Organisations

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• Angelman Syndrome Families of Arkansas - Facebook group for families in Arkansas

• Angelman Syndrome Families of California - Facebook page for families & professionals in California

• Angelman Syndrome Support Colorado - Facebook page for families in Colorado

• Florida Angelman Syndrome Parents - Facebook group for parents in Florida

• Central Illinois Angels - facebook group for families in Central Illinois

• Angelman Syndrome Families in Indiana - Facebook page of state association for families in Indiana

• Massachusetts Angelman Connections - Facebook group for families in Massachusetts

• Michigan Chapter of Angelman Syndrome - Michigan State chapter for famiies

• Angelman Missouri - Facebook group for families in Missouri

• Angelman Moms of Tennessee - Facebook group for mothers of a child or adult with Angelman Syndrome in Tennessee

• Angelman Syndrome Group of Texas - Facebook page for families in Texas

• Lone Star State Angelman Syndrome Group - facebook group for families in Texas

• Angelman Syndrome Families of Utah - Utah State facebook page

• Va & NC Angels (Angelman Syndrome) - facebook group for families in Virginia and North Carolina

• Wisconsin Angelman Families - Facebook page for families in Wisconsin

 

USA - Cities

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• Angelman's of Houston and surrounding areas - Facebook group for families in and around Houston, Texas

• Long Island "Angels" ( ANGELMAN SYNDROME FAMILYS) - Facebook group for families in Long Island area of New York

 

Venezuala

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• Fundación Un Angel en Venezuela - La página de Facebook para las familias de niños con síndrome de Angelman en Venezuela 

 

Vietnam

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• Angelman Vietnam (Angelman Việt Nam) - Facebook page for families of children with Angelman Syndrome in Vietnam (Facebook trang cho gia đình có con bị hội chứng Angelman tại Việt Nam)