The Angelman Network was established as a registered Charitable Trust in
New Zealand in 2011.
The Angelman Network is a family/whānau driven charitable trust based in New Zealand that connects and supports those affected by Angelman syndrome, and is 100% volunteer-run.
We are the only organisation in New Zealand dedicated to providing up-to-date information on Angelman Syndrome. We aim to share this information on our website, social media sites and newsletters, and to keep families connected and supported through social media, family gatherings and fundraising activities in NZ.
The Angelman Network is a Registered Charitable Trust (CC46746). In order to achieve our objectives we actively network with a broad range of related/relevant organisations, MPs, families, professionals, specialists, and research teams - in NZ and around the world.
To connect NZ Angelman parents/whānau so they feel valued and supported
To raise more awareness of Angelman Syndrome in NZ
To support and advocate for families so they can empower those with AS to realize their
potential and aspirations through person-centred planning
To network nationally and internationally with organizations, specialists and families/whānau
in order to access and distribute accurate and up-to-date information about AS
To pursue opportunities to support Angelman Syndrome research. We promote global
collaboration for AS research and the Global Angelman Syndrome Registry
We support 21st century values of inclusion and neurodiversity as specified in the Convention
We advocate for the Right to a Voice in NZ - to support and promote the global Communication
Revolution for non-speakers using the new language of Augmentative and Alternative
Communication (AAC) made available by advances in Assistive Technology (AT)
To contact the organisation please email: firstname.lastname@example.org
We are honoured
to have Mary-Louise
Bertram as The
Angelman Network’s patron. Mary-Louise is an expert in AAC and an international presenter for Communication and Angelman syndrome. She lives in Perth, Australia.
Board of Trustees, 2019/20
The Angelman Network Trust is governed by a board of trustees. Trustees volunteer their time and expertise to uphold the objectives of the Trust Deed.
Kia ora koutou, my name is Elizabeth Becker. I am a mother to three young children and my middle daughter, aged 5 years, has Angelman syndrome (del +). I was raised and currently live in the Waikato but also have whānau in Taranaki. Alongside my work as a mother I am also a doctor, with a background in clinical paediatric medicine, currently working within the space of population health medicine.
Kia ora koutou, my name is Nicola Eley and I am a teacher and Deputy Principal. My husband and I live in Auckland and work together at a local primary school. I have an adult step daughter and a family of furry feet including our chocolate labrador Milo, who comes to work with us each day. My association with The Angelman Network is through a close friend who has a grandson with Angelman syndrome.
Kia ora koutou, my name is Russell Vaoiva. I live in Auckland and my younger brother has Angelman syndrome. Prior to my current role as a mentor working with TYMS, I was an intermediate/secondary school teacher. I have a Bachelor of Arts in Geography and Organisation Studies; a Master of Arts in geography through the University of Auckland; and a Graduate Diploma in Teaching through AUT.
Kia ora koutou, my name is Ursula Christel. I am a founding Trustee for The Angelman Network, volunteering on the Trust board since 2009. I am a qualified teacher with a BA. Dip Ed, majoring in Art, Art History and English. My middle son has Angelman syndrome and he lives with me in Warkworth. Apart from being his fulltime caregiver, I am a practicing artist and I teach art to various groups, covering a wide range of ages/abilities.
Kia Orana, my name is Mary Ellen Takie. I am of Rarotongan and Kiwi descent, currently residing in West Auckland. I am a qualified Social Worker and have a Bachelor of Social Practice with experience in working with at-risk youth. I have a passion for working with families and youth. I have five sons and my oldest son was diagnosed with Angelman Syndrome at the age of 3.5 years old.
Kia ora, my name is Lisa and we live in Dunedin. I am currently studying towards a Bachelor of Teaching in Early Childhood Education. I work as an education support worker and am very passionate about early intervention. I am also mum to a 7 year old angel and his 5 year old brother.