The Angelman Network was established as a registered Charitable Trust in
New Zealand in 2011.
The Angelman Network is a family/whānau driven charitable trust based in New Zealand that connects and supports those affected by Angelman syndrome.
We are the only organisation in New Zealand dedicated to providing up-to-date information on Angelman Syndrome. We aim to share information on our website, social media sites and newsletters, and to keep families connected and supported through social media, family gatherings and fundraising activities in NZ.
The Angelman Network is a Registered Charitable Trust (CC46746). In order to achieve our objectives we actively network with a broad range of related and relevant organisations, MPs, families, professionals, specialists, and research teams - in NZ and around the world.
We are deeply appreciative of the expertise and generous support of
Webster Malcolm Law, Warkworth - for their assistance in helping us
update our Trust Deed in August 2020.
To connect NZ Angelman parents/whānau so they feel valued and supported
To raise more awareness of Angelman Syndrome in NZ
To support and advocate for families so they can empower those with AS to realize their
potential and aspirations through person-centred planning
To network nationally and internationally with organizations, specialists and families/whānau
in order to access and distribute accurate and up-to-date information about AS
To pursue opportunities to support Angelman Syndrome research. We promote global
collaboration for AS research and the Global Angelman Syndrome Registry
We support 21st century values of inclusion and neurodiversity as specified in the Convention
We advocate for the Right to a Voice in NZ - to support and promote the global Communication
Revolution for non-speakers using the new language of Augmentative and Alternative
Communication (AAC) made available by advances in Assistive Technology (AT)
To contact the organisation please email: email@example.com
We are honoured
to have Mary-Louise
Bertram as The
Angelman Network’s patron. Mary-Louise is an expert in AAC and an international presenter for Communication and Angelman syndrome. She lives in Perth, Australia.
Board of Trustees, 2020/21
The Angelman Network Trust is governed by a board of Trustees who volunteer their time and expertise to uphold the objectives
of the Trust Deed.
Kia ora koutou, my name is Elizabeth Becker. I am a mother to three young children and my middle daughter, aged 5 years, has Angelman syndrome (del +). I was raised and currently live in the Waikato but also have whānau in Taranaki. Alongside my work as a mother I am also a doctor, with a background in clinical paediatric medicine, currently working within the space of population health medicine.
Kia ora koutou, my name is Nicola Eley and I am a teacher and Deputy Principal. My husband and I live in Auckland and work together at a local primary school. I have an adult step daughter and a family of furry feet including our chocolate labrador Milo, who comes to work with us each day. My association with The Angelman Network is through a close friend who has a grandson with Angelman syndrome.
Kia ora, my name is Lisa and we live in Dunedin. I am currently studying towards a Bachelor of Teaching in Early Childhood Education. I work as an education support worker and am very passionate about early intervention. I am also mum to a 7 year old angel and his 5 year old brother.
Kia ora, my name is Darcelle Bell-Ataata. In 2014, my son was diagnosed with Angelman Syndrome UPD at 9 months of age. We live in South Auckland and my husband is of Tongan descent. We have 2 other children. I’m a Graphic Creator and I work in the community of Manurewa for The Pride Project Charitable Trust. I am also a Trustee on the Wiri Licensing Trust and the Middlemore Consumer Council. I aspire to be a voice for not only our Angels but for all parents and carers of Special Children. My hope is that I may influence and implement change and a better quality of life for our Angelman Syndrome community.
Kia ora, my name is Jeanne Coker. I live in Christchurch and am the proud mum of two young adults. My association with Angelman Syndrome started 15 years ago when my son
(then aged 5), was diagnosed with Uniparental Angelman Syndrome. Our Angelman journey has had its challenges but has been filled with unconditional love, happy memories and a lot of laughter. I work as a primary school teacher and am passionate about inspiring young tamariki to be the best that they can be.
Kia ora I'm Nadine and proud Mummy to my 9 year old angel, and her 7 year old sister. I have a BA in Education and Sociology and work in the IT industry as a Business Analyst. I've lived in London, Canada and Hong Kong, but we are now happily based back in my home city of Wellington. I've recently rejoined the Angelman Network as a Trustee after having previously being one for five years when my angel was younger.
Kia Orana, my name is Mary Ellen Takie. I am of Rarotongan and Kiwi descent, currently residing in West Auckland. I am a qualified Social Worker and have a Bachelor of Social Practice with experience in working with at-risk youth. I have a passion for working with families and youth. I have five sons and my oldest son was diagnosed with Angelman Syndrome at the age of 3.5 years old.