ABOUT US
The Angelman Network was established as a registered Charitable Trust in
New Zealand in 2011.
To find out more about what we do, see our 2023 Annual Report here
OUR STORY
The Angelman Network is a family/whānau driven organisation based in New Zealand that connects and supports those impacted by Angelman syndrome.
We are the only organisation in New Zealand dedicated to providing up-to-date information on Angelman Syndrome. We share information on our website, social media sites and newsletters, and keep families connected and supported through social media, family gatherings and fundraising activities in NZ.
The Angelman Network is a Registered Charitable Trust (CC46746). To achieve our objectives we actively network with aligned organisations, MPs, families, professionals, specialists, and research teams - both in NZ, and around the world.
We are deeply appreciative of the expertise and generous support of Webster Malcolm Law, Warkworth - for their assistance in helping us update our Trust Deed in August 2020.
OUR PRINCIPLES
1. MĀTĀPONO / PRINCIPLES
1.1 The Trust is committed, in attaining its purposes, to:
(a) respecting and implementing the dual heritage of the partners of Te Tiriti o Waitangi (the Treaty of Waitangi);
(b) respecting the cultural diversity of people and encourage people from all nationalities to utilize the Trust’s facilities and services.
1.2 Our principles:
(a) The Angelman Network is a NZ support network with a global web presence, which aims to enhance the lives of people with Angelman Syndrome in New Zealand. We aim to be an inclusive, collaborative, and transparent organisation that operates with integrity and respect for all cultures.
Trustees 2024/25
The Angelman Network Trust is governed by a board of Trustees who volunteer their time and expertise to uphold the objectives
of the Trust Deed.
Kia ora koutou, my name is Ursula Christel, and I am a founding member of The Angelman Network trust. I am a qualified Art/Art History teacher and a social practice artist with a passion for inclusion. Inclusion is paramount for creating healthy, cohesive communities so that everyone can have a sense of belonging. I have three adult sons, one of whom has Angelman Syndrome. I enjoy the teamwork and challenges of NGO governance as we strive to make a positive difference, together.
Chairperson
Kia ora koutou, my name is Nicola Eley and I am a teacher and school Principal. My husband and I live in Auckland and work together at a local primary school. I have an adult step daughter and a family of furry feet including our chocolate labrador Milo, who comes to work with us each day. My association with The Angelman Network is through a close friend who has a grandson with Angelman syndrome.
Treasurer
Hello, my name is Tareen Ellis and I have worked within a broad range of sectors, focusing on people leadership, commercial management, strategic planning and change management skills. I have also been fortunate to have sat on a few boards as part of my career. I hold a BCom Hons and have a Master's in Psychology. I have two beautiful boys; our youngest is nearly two and has Angelman Syndrome. Hailing originally from South Africa we feel blessed to be able to call New Zealand home now, for over 10 years.
Trustee
Kia ora, I am Alison Barta, a recent returnee to New Zealand after living abroad in eastern Europe for many years. I am still finding my feet, settling into my beautiful home in Wellington, the capital of New Zealand. I have two sons, one of whom has Angelman syndrome. It has been ten very challenging years for me. I will be bringing my experience as a parent-caregiver to the Board, and as a parent-rep from the Wellington region.
Trustee
Did you know The Angelman Network is a registered Charity in NZ?
You can help to support the work that we do, by contributing a donation to our Givealittle Page here.
Or make a direct bank transfer to:
The Angelman Network Trust - ANZ Bank 06-0817-0352270-00
All donations are gratefully received.
Contact The Angelman Network: angelmannetwork@gmail.com