The Angelman Network
Connecting and supporting those affected by Angelman Syndrome (AS)
Te Hononga Angelman
kia whai hononga me te tautoko hoki i a rátou e pá kii ana ki te mate Angelman Syndrome (AS)
Kia ora. Welcome to the website for The Angelman Network
This website is our primary resource for sharing the latest information
about Angelman Syndrome. You will find:
key information for newly diagnosed in NZ
general health management plans for different age groups
current research on Angelman syndrome
and further topics relevant for both families and professionals.
The Angelman Network encourages a person-centered approach for those who
We connect and support NZ families by encouraging
support services, see Parent to Parent.]
(IAD) to raise funds and spread awareness of the condition. Short film about Alice - Nelson, New Zealand
What is Angelman syndrome?
Angelman syndrome (AS) is a rare neuro-genetic condition caused by a
reduction of expression of the UBE3A gene located on chromosome 15.
It is not a degenerative disease nor caused by anything parents may
have done before or during pregnancy. With good health management
and appropriate supports - especially for communication - most people
born with Angelman syndrome will have a normal life expectancy. With
a prevalence of 1:15,000 it affects males and females of all racial/
ethnic groups equally. Read more on Angelman syndrome here.
Our Vision / O motor kitenga
That people with Angelman syndrome are: Te tangata mau i te mate AS ka:
- accepted and acknowledged as unique individuals - whakaaetia, manakotia hoki kia u ki to rátou mana ake
- given access to a full language system (AAC) so that - kia whiwhi ai ki nga ara reo kia rongohia ai o ratou reo e te their voices can be heard katoa ma roto i te àpititanga me etahi atu whakamòhiotanga
- valued as contributing members of their community - kia whai hua rátou hei tángata tákoha nó tó rátou hápori