Kia ora. Welcome to the website for The Angelman Network

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INFORMATION:

This website is our primary resource for sharing the latest information 

about Angelman Syndrome. You will find:

• key information for newly diagnosed in NZ

• general health management plans for different age groups

• views on communication, education and inclusion

• current research on Angelman syndrome

• and further topics relevant for both families and professionals. 

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INCLUSION:

The Angelman Network encourages a person-centered approach for those who

have Angelman Syndrome, based on the United Nations Convention on the

Rights of Persons with Disabilities. Read more on inclusion, here.  

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CONNECTION:

We connect and support NZ families by encouraging 

community networks and by assisting with regional

gatherings across the country. [For free and confidential

support services, see Parent to Parent.]​

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AWARENESS:

On the 15th February each year we celebrate International Angelman Day

(IAD) to raise funds and spread awareness of the condition.                                  Short film about Alice - Nelson, New Zealand

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What is Angelman syndrome?   

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Angelman syndrome (AS) is a rare neuro-genetic condition caused by a

reduction of expression of the UBE3A gene located on chromosome 15. 

It is not a degenerative disease nor caused by anything parents may

have done before or during pregnancy. With good health management

and appropriate supports - especially for communication - most people

born with Angelman syndrome will have a normal life expectancy.  With

a prevalence of 1:15,000 it affects males and females of all racial/

ethnic groups equally. Read more on Angelman syndrome here. 

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