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The Angelman Network

Connecting and supporting those impacted by Angelman Syndrome (AS)

Te Hononga Angelman
kia whai hononga me te tautoko hoki i a rátou e pá kii ana ki te mate Angelman Syndrome (AS)

Kia ora. Welcome to the website for The Angelman Network

What is Angelman syndrome?   

Angelman syndrome (AS) is a rare neuro-genetic condition caused by a reduction of

expression of the UBE3A gene located on chromosome 15.  AS is not a degenerative disease

nor caused by anything parents may have done before or during pregnancy.


With good health management and appropriate supports - especially for communication -

most people born with Angelman syndrome will have a normal life expectancy.  AS has a 

prevalence of 1:15,000 and affects males and females of all racial/ethnic groups equally.


Read more on Angelman syndrome here.


Our Vision / O motor kitenga    

That people with Angelman syndrome are / Te tangata mau i te mate AS ka:

- accepted and acknowledged as unique individuals / whakaaetia, manakotia hoki kia u ki to rátou mana ake

- given access to a full language system (AAC) so that their voices can be heard / kia whiwhi ai ki nga ara reo kia                  rongohia ai o ratou reo e te katoa ma roto i te àpititanga me etahi atu whakamòhiotanga

- valued as contributing members of their community / kia whai hua rátou hei tángata tákoha nó tó rátou hápori

"Ehara taku toa i te toa takitahiengari he toa takimano /

my strength is not that of the individual but that of the collective"

- Maori proverb


On the 15th February each year we celebrate International Angelman Day (IAD). We gather together, raise funds and spread awareness for AS in our local communities.


Its vital to share our stories so that we can lobby for the acknowledgment of family carers as a workforce, as well as for equitable access to health, social care, diagnoses and treatments for all those who live with AS in Aotearoa. 

2023 is the 10th anniversary of IAD.

PLEASE support our TEN4TEN4TEN year-long fundraiser. 


Funds will go towards establishing an Angelman syndrome registry in NZ and an AS clinic in Auckland, and to support families to access the clinics.

See our Givealittle page here. 

TEN 4 TEN 4 TEN IAD2023.jpg


This website is our primary resource for sharing the latest information about Angelman Syndrome. 

You will find:



The Angelman Network encourages a person-centered approach for those who

have Angelman Syndrome, based on the United Nations Convention on the

Rights of Persons with Disabilities.

Read more on inclusion here.  

On 29th Oct 2021, the NZ  government announced the formation of a Ministry of Disabled Persons and the  national roll-out of Enabling good Lives (EGL). Read more on the announcement here 


We connect and support NZ families by encouraging 

community networks and by assisting with regional

gatherings across the country. 


Each year The Angelman Network celebrates International Angelman Day with an organised family event that rotates  between the 3 main centres in NZ - Auckland, Wellington, Christchurch. 


For free and confidential

support services in NZ, see Parent to Parent.


Please help support the work we do for Angelman Syndrome in New Zealand.

Donate to our Givealittle Page by clicking on the Donation button. 


Make a direct bank transfer: 

The Angelman Network Trust

ANZ Bank  06-0817-0352270-00

Please include your name as reference and send us an email if you would like a receipt for tax credits. 

All donations are gratefully appreciated. 

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