The Angelman Network

Connecting and supporting those affected by Angelman Syndrome (AS)

Te Hononga Angelman

kia whai hononga me te tautoko hoki i a rátou e pá kii ana ki te mate Angelman Syndrome (AS)

Kia ora. Welcome to the website for The Angelman Network

INFORMATION:

This website is our primary resource for sharing the latest information 

about Angelman Syndrome. You will find:

INCLUSION:

The Angelman Network encourages a person-centered approach for those who

have Angelman Syndrome, based on the United Nations Convention on the

Rights ofPersons with Disabilities. Read more on inclusion, here.  

CONNECTION:

We connect and support NZ families by encouraging 

community networks and by assisting with regional

gatherings across the country. [For free and confidential

support services, see Parent to Parent.]

AWARENESS:

On the 15th February each year we celebrate International Angelman Day

(IAD) to raise funds and spread awareness of the condition.                                  Short film about Alice - Nelson, New Zealand

What is Angelman syndrome?   

Angelman syndrome (AS) is a rare neuro-genetic condition caused by a

reduction of expression of the UBE3A gene located on chromosome 15. 

It is not a degenerative disease nor caused by anything parents may

have done before or during pregnancy. With good health management

and appropriate supports - especially for communication - most people

born with Angelman syndrome will have a normal life expectancy.  With

a prevalence of 1:15,000 it affects males and females of all racial/

ethnic groups equally. Read more on Angelman syndrome here

 

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Our Vision / O motor kitenga    

That people with Angelman syndrome are:                             Te tangata mau i te mate AS ka:

- accepted and acknowledged as unique individuals           - whakaaetia, manakotia hoki kia u ki to rátou mana ake

- given access to a full language system (AAC) so that       - kia whiwhi ai ki nga ara reo kia rongohia ai o ratou reo e te         their voices can be heard                                                        katoa ma roto i te àpititanga me etahi atu whakamòhiotanga

- valued as contributing members of their community   - kia whai hua rátou hei tángata tákoha nó tó rátou hápori

"Ehara taku toa i te toa takitahiengari he toa takimano / my strength is not that of the

individual but that of the collective" - Maori proverb

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