What We Do
We aspire to source and distribute evidence-based information on Angelman Syndrome.
We network with affiliated organisations in NZ, local
councillors and politicians in NZ, researchers and research teams (NZ and global), professionals and specialists working with people who have AS, and other AS organisations around the world.
Support and Advocacy
We connect families in New Zealand who are affected by AS. We also support them by collaborating with affiliated organisations in NZ that advocate for rare disorders, for AAC (communication support), access to appropriate medication,
an accessible society, inclusion in schools, and the wellbeing of caregivers.
Resources and Publications
This website is our Primary Resource. It is regularly updated with the most current information on Angelman syndrome.
Families in NZ can contact us for an Information Pack.
A range of other publications, resources, media articles
and relevant links, can be found on our Resource page.
Due to the small population of NZ, and the rarity of Angelman syndrome, we provide small grants for research on Angelman syndrome and/or research on matters affecting social policy and funding that could benefit our NZ families. We also provide Family Grants to assist families to attend conferences/workshops related to Angelman syndrome.