What We Do

Network

Networking involves researching, sourcing, sharing, and distributing evidence-based information on AS. We actively network with our  affiliated organisations, local 

councillors and politicians in NZ, researchers and research teams (NZ and global), professionals  and specialists working with people who have AS, and other AS 

organisations around the world. 

Advocacy and Support

We connect and support families in New Zealand who are affected by AS and we advocate on their behalf.

We also actively support affiliated organisations in NZ that advocate for rare disorders, the Right to a Voice, access to appropriate medication,

 sufficient respite opportunities, an accessible society, inclusion in schools, and the wellbeing of caregivers. 

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Resources and Publications

This website is our Primary Resource. It is regularly updated with the most current information on Angelman syndrome.

Families in NZ can contact us for an Information Pack. A range of other publications, resources, media articles and AS relevant links can be found on our Resource page.  

Grants

We provide grants for research on Angelman syndrome and/or research on matters affecting social policy and funding that could benefit our families in NZ.

We also provide Family Grants to assist families to attend conferences/workshops related to Angelman syndrome. 

The Angelman Network is a

Registered Charitable Trust based in New Zealand

CC46746.

Disclaimer: Links to other Internet sites are for the convenience of all web-users. The Angelman Network is not responsible for the availability or content of these external sites and we do not endorse, warrant or guarantee any products, services or information that may be offered at these sites. Always contact your own medical practitioner for any medical advice.

©2018 by The Angelman Network.