Membership

​

Becoming a member of The Angelman Network requires a small annual donation. When you sign up you will be helping us achieve our aims and objectives as per our Trust Deed.

• We are a non-profit organization run solely by volunteers.

• We rely fully on our own fundraising endeavours and donations from our members and the public to achieve our objectives.

• We have no paid staff so 100% of funds raised goes to the charity.

• Any donations, no matter how big or small, will be gratefully received. As we are a registered Charitable Trust, donations over $5 will be issued with a receipt which you can use to claim a tax refund in NZ. 

 

The objects and purposes of the Trust 

​

a) To apply the capital and income of the Trust to any charitable purpose within New Zealand and overseas which are from time to time selected by the Board and are valid charitable purposes. 

​

b) Without limiting the generality of the above, to apply the capital and income of the Trust to the following charitable purposes:

​

   (i) To improve contacts, information sharing and support among people affected by Angelman syndrome, and their families, within New Zealand.

   (ii) To support and advocate for accelerated research into the treatment of Angelman syndrome.

   (iii) To support the education of families, clinicians and others involved in the care and support of those with Angelman syndrome.

   (iv) To build links with overseas families, clinicians, researchers and support groups, to enhance local knowledge about this condition.

   (v) To support and advocate for appropriate medical, genetic and other specialist services to meet the needs of those with Angelman syndrome and their

       families.

   (vi) To work co-operatively with other groups and individuals interested in rare conditions to promote common interests.

   (vii) To raise funds and accrue assets to achieve these aims. 

 

Member's donations will help make a positive impact in the lives of individuals with Angelman syndrome, as well as their families.

​

Members benefits 

​

• A Welcome/Information pack (please supply postal address)

• Discounted rates for events where applicable

• Newsletters and updates

• NZ families become eligible for the Family Grant 

 

Membership Payment/Donation 

​

• Parent/Family : Annual subscription - NZ$ 20                

• Non-Family/Professional/Org/Other: Annual subscription – NZ$ 30

 

Online Bank Transfer

​

• Bank details for The Angelman Network: ANZ Bank  06-0817-0352270-00

• Please use your surname and 'Membership' as the code/reference with your registration.

• Then send us an email to angelmannetwork@gmail.com with your contact details so we can add you to our database and issue a receipt. Contact details: Name. Postal address. Email address. Phone number. Age of child if applicable. 

​